Collegian
Volume 16, Issue 4 , Pages 201-209 , December 2009

Absolutely fabulous—But are we? Carers’ perspectives on satisfaction with a palliative homecare service

  • Lera O’Connor, RN, MPH

      Affiliations

    • Lancaster University, England, United Kingdom
    • Cabrini-Deakin Centre for Nursing Research & RN Inpatient Palliative Care Unit, Cabrini Palliative Care Service, Victoria, Australia
  • ,
  • Anne Gardner, RN, CritCareCert, MPH, PhD, MRCNA

      Affiliations

    • James Cook University & Townsville Health Service District, Queensland, Australia
    • Corresponding Author InformationCorresponding author at: IMB 105, 1st Floor, The Townsville Hospital, PO Box 670, Townsville, Queensland 4814, Australia. Tel.: +61 07 4796 2552; fax: +61 07 4796 2561.
  • ,
  • Lynne Millar, BA(Psych Hons)

      Affiliations

    • James Cook University & Townsville Health Service District, Queensland, Australia
  • ,
  • Peter Bennett, RN, CritCareCert, BBus(Admin)

      Affiliations

    • Cabrini Palliative Care Service, Victoria, Australia

Received 13 November 2008 ,Revised 19 March 2009 ,Accepted 28 April 2009.

References 

  1. Addington-Hall J, McPherson C. After-death interviews with surrogates/bereaved family members: Some issues of validity. Journal of Pain and Symptom Management. 2001;22(3):784–790
  2. Aranda S, Hayman-White K. Home caregivers of the person with advanced cancer—An Australian perspective. Cancer Nursing. 2001;24(4):300–307
  3. Aranda S, Yates P, Edwards H, Nash R, Skerman H, McCarthy A. Barriers to effective cancer pain management: A survey of Australian family caregivers. European Journal of Cancer Care. 2004;13(4):336–343
  4. Aspinal F, Addington-Hall J, Hughes R, Higginson IJ. Using satisfaction to measure the quality of palliative care: A review of the literature. Journal of Advanced Nursing. 2003;42(4):324–339
  5. Australian Institute of Health and Welfare. (2003). Interactive cancer data. Retrieved 1 February, 2007, from http://www.aihw.gov.au/cognos/cgi-bin/ppdscgi.exe?DC=Q&E=/Cancer/cancerageratesv2007.
  6. Commonwealth Department of Health and Aged Care. (2000). National Palliative Care Strategy: A national framework for palliative care service development. Retrieved 20 November, 2007, from http://www.health.gov.au/internet/wcms/publishing.nsf/Content/palliativecare-pubs-npcstrat.htm/$FILE/Strategy.pdf.
  7. Endacott R. Clinical research 4: Qualitative data collection and analysis. Intensive and Critical Care Nursing. 2005;21(2):123–127
  8. Fakhoury W, McCarthy M, Addington-Hall J. Determinants of informal caregivers’ satisfaction with services for dying cancer patients. Social Science & Medicine. 1996;42(5):721–731
  9. Given BA, Given CW, Kozachik S. Family support in advanced cancer. Cancer Journal for Clinicians. 2001;51(4):213–231
  10. Grande G, Todd C, Barclay S, Farquhar M. A randomized controlled trial of a hospital at home service for the terminally ill. Palliative Medicine. 2000;14(5):375–385
  11. Grunfeld E, Coyle D, Whelan T, Clinch J, Reyno L, Earle CC, et al. Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ: Canadian Medical Association Journal. 2004;170(12):1795–1801
  12. Guberman N, Keefe J, Fancey P, Barylak L. ‘Not another form!’: Lessons for implementing carer assessment in health and social service agencies. Health & Social Care in the Community. 2007;15(6):577–587
  13. Hamel J. The focus group method and contemporary French sociology. Journal of Sociology. 2001;37(4):341–353
  14. Harding R, Higginson I. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliative Medicine. 2003;17(1):63–74
  15. Hendrix C, Ray C. Informal caregiver training on home care and cancer symptom management prior to hospital discharge: A feasibility study. Oncology Nursing Forum. 2006;33(4):793–798
  16. Hinton J. How reliable are relatives’ retrospective reports of terminal illness? Patients’ and relatives’ accounts compared. Social Science & Medicine. 1996;43(8):1229–1236
  17. Hudson P. Home-based support for palliative care families: Challenges and recommendations. Medical Journal of Australia. 2003;179(6):S35–S37
  18. Hudson P, Aranda S, McMurray N. Intervention development for enhanced lay palliative caregiver support—The use of focus groups. European Journal of Cancer Care. 2002;11(4):262–270
  19. Jacelon CS, O’Dell KK. Analyzing qualitative data. Urologic Nursing. 2005;25(3):217–220
  20. Jansma FFI, Schure LM, de Jong BM. Support requirements for caregivers of patients with palliative cancer. Patient Education and Counseling. 2005;58(2):182–186
  21. Keppel G, Wickens TD. Design and analysis: A researcher's handbook. 4th ed.. New Jersey: Pearson Prentice Hall; 2004;
  22. Kinsella G, Cooper B, Picton C, Murtagh D. A review of the measurement of caregiver and family burden in palliative care. Journal of Palliative Care. 1998;14(2):37–45
  23. Lecouturier J, Jacoby A, Bradshaw C, Lovel T, Eccles M. Lay carers’ satisfaction with community palliative care: Results of a postal survey. Palliative Medicine. 1999;13(4):275–283
  24. Mather M, Shafir E. Misrememberance of options past: Source monitoring and choice. Psychological Science. 2000;11(2):132
  25. Milberg A, Olsson E-C, Jakobsson M, Olsson M, Friedrichsen M. Family members’ perceived needs for bereavement follow-up. Journal of Pain and Symptom Management. 2008;35(1):58–69
  26. Morris SM, Thomas C. The need to know: Informal carers and information. European Journal of Cancer Care. 2002;11(3):183–187
  27. Palliative Care Australia. (2007). What is palliative care? Retrieved 12 November, 2007, from http://pallcare.org.au/portals/46/resources/WhatIsPalliativeCare.pdf.
  28. Payne S, Smith P, Dean S. Identifying the concerns of informal carers in palliative care. Palliative Medicine. 1999;13(1):37–44
  29. Sharpe L, Butow P, Smith C, McConnell D, Clarke S. The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers. Psycho-Oncology. 2005;14(2):102–114
  30. Zapart S, Kenny P, Hall J, Servis B, Wiley S. Home-based palliative care in Sydney, Australia: The carer's perspective on the provision of informal care. Health & Social Care in the Community. 2007;15(2):97–107

PII: S1322-7696(09)00031-6

doi: 10.1016/j.colegn.2009.04.005

Collegian
Volume 16, Issue 4 , Pages 201-209 , December 2009